Wednesday, January 23, 2019

Hit the road Jack!

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In memory of Jack Hagelin Sept. 04, '02 - Mar. 27, '07 * I posted this video June 03, '06 after he was discharged from the transplant unit. Jack Passed away peacefully surrounded with Love at the Children's Hospital of Philadelphia, from complications from pneumonia and after a 4 and ½ year battle, a diagnosis of NEMO Primary Immune Deficiency and Ectodermal Displasia, two rare genetic disorders. His treatment included a Stem Cell Bone Marrow transplant. In his short 4 and ½ years he helped science gain more knowledge for this rare genetic condition and through this knowledge to help other children with this same condition. Support NEMO research here http://www.andy.org.mx www.andy.org.mx
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